The dark and the difficulty

On operations and depression and musical talent wasted.

Sorry, more angst before I get back into reviewing. It happens.

There is a Banksy poster on my wall – The Girl With The Balloon’. There is always hope. I bought it in a lighter time. Now, even though it is opposite it my bed, I rarely notice that it is there. Unconsciously ignoring the message?

Overworked and overwrought; life is catching up on me. Study and work and never saying no to requests for extra hours; trying to create my own things on the side. And on top of all of that, chronic illness and depression, and exhaustion.

It’s no wonder I’ve spent the last three mornings in bed, even if they have been tinged with guilt and a sense of irresponsibility. Like I haven’t earned the right to feel incapable of scooping myself out of bed in one piece without every fibre of my body – both physical and mental – screaming in protest. You need to REST.

Sleep is for the week, they say, and it may be true. Lately, sleep takes a long time to come and in the morning I can’t muster up anything that could be called energy. Yawning on nine hours of sleep. Waking up before alarms go off, but incapable of going back to sleep because the brain is laden down with feelings of guilt and fear and frustration.

I was going through some old word files recently, and found a bunch of ‘what I want to do with my life’ type documents from when I was sixteen/seventeen. Apart from using lyrics from ‘Girl Anachronism’ as my angsty version of Lorem Ipsum when I got off track, it’s so… hopeful. So upward gazing.

“what do i want with my life? what sort of a career do i want? i have no idea. i like the idea of too many things, i don’t love the idea of doing anything, right now. except for crazy impossible things, like tv presenter, radio presenter, scriptwriter, full-time author, actress, musician. artist of all trades. bette-type art gallery person. i don’t know. i will wind up being a teacher, probably. i don’t know what possibilities i have. i just know that i want creativity and recognition.”

I wrote the word ‘skinny’ six times in one document. Sorry, seventeen-year-old self, still not there. I wrote a hypothetical future in which I studied jazz at Victoria and modeled my wardrobe on Vita from The Tiggie Tompson Show and planned piercings at the top of my ear (well, that part I fulfilled).

“Going to be a French speaking, Classical and Artistic jazz musician who also writes. A writer who also plays jazz. I might even be in a rock band. I will have long black hair, with a Karen O fringe, then I will cut it short and dye it bright blue.”

I’ve never been in a band, and I’ve never really played jazz. It seems like my brief fascination with pursuing it was a sort of school leaver midlife crisis. My music has fallen through my fingers and the only instrument in this city is my ukulele. And in stress I chew my fingernails, making strumming more difficult. My flute and my voice have fallen on hard times, and they probably can never be revived to the standard that they were previously held to. Such standards that I held myself to.

That I still hold myself to – but now giving up is the option. If you can’t do it properly, don’t do it at all – and so with school behind me and the only musical options either community based or semi-professional I let it slide away through formerly nimble fingers. Not dedicated enough to my craft for the AYO or equivalent, but too proud to play for a non-auditioned ensemble. And now, so out of practice that one wonders who would have me anyway?

What a tangent.

I nearly ran out of anti-depressants. Yesterday I had one pill left, and I finally worked up the will power to call the GP’s office to ask for a new prescription. It cost me $16 for the piece of paper. I’m nearly at the end of my second bottle of mercaptopruine; I’ve done my fourth Humira injection at home. To think that I spent a couple of months of last year free of all medication (apart from industrial strength painkillers) – how strange and fancy-free.

Soon it will be a year since my surgery, and thinking about that makes break down even more. I was supposed to be fixed. I was supposed to have had the reversal operation by now – I wasn’t supposed to still be smiling and strong and telling people how totally great and normal life with an ostomy can be. Because it’s horrible. It’s better than constant Crohn’s-type hell-pain, but it’s horrendous none the less. Something as simple as wondering where the hell to stash your boxes of supplies – or the fact that going out without a handbag or backpack is out of the question because one needs to always be prepared for an emergency situation. Or the constant gurgles.

I may write positively about it at times, but that’s only because I want to be seen as normal and capable. I don’t want to be this broken girl who fell so low because her body and her mind let her down.

 

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