So, I’m not sure how many people reading this on a regular basis have investigated this blog because of its IBD/health connections, but as you may or may not be aware, in addition to my on-going 365 pieces project, I am trying to work on getting together a greater number of pieces on gastrointestinal (and mental, which I have delved into recently, too) health. But on the off chance that any of you have a vested interest in any subsections of said health issues, I thought I’d put it to you, my hypothetical readers, to have a say. Current areas I’ll … Continue reading upcoming pieces
I had a moment of terror last night – woken up at 2:30 by my insides, for the first time in a while. Pain, not the worst I’ve ever had, certainly, but decidedly unpleasant pain. Naturally, I went to the bathroom. Spent 20 minutes alternating between almost-acceptable and agony, and I’m not quite sure whether the tears were from the pain, or the frustration, or a combination. My money’s on the latter. But with tramadol, the pain subsided. I managed to sleep, fitfully, mind you, but some sleep was had. There was no blood – both good and bad, I suppose, because … Continue reading constant vigilance
So, I always enjoy reading lists that bloggers like Gala Darling create – inspirational lists of things to do, places to go, ways to cheer yourself up, ways to celebrate life… all kinds of things. Thing is, by its very nature, IBD – or even severe IBS, I’ll admit it – kind of limits your social/adventuring options. So, I bring to you… 14 WAYS TO HAVE A RAD TIME, EVEN IF YOUR SIGNIFICANT OTHER IS THE PORCELAIN THRONE. [Section 1 – at home! since, you know, if you’re sick, home is often where the heart, and the head, and the … Continue reading 14 WAYS TO HAVE A RAD TIME, EVEN IF YOUR SIGNIFICANT OTHER IS THE PORCELAIN THRONE.
I originally wrote this to enter into the xojane.com ‘It Happened To Me’ competition – only to then read in the T&Cs that it’s only open to US citizens. So, to the blog! Basically a general introduction to life with chronic bowel disease. I was eighteen when I first encountered blood in the toilet bowl. And it definitely wasn’t my period. My first inclination wasn’t to freak out and Google what it meant, and it certainly wasn’t to go to the doctor – eighteen-year-old girl talking to the family GP about bowel movements? Yeah, no thanks. No, my approach was … Continue reading uber-cool? under-carriage? uphill climb? ULCERATIVE COLITIS.
For quite some time, I’ve been aware that I probably need counseling, or therapy, or whatever you want to call it. As much as I have unhealthy intestines, I also have a brain that doesn’t cooperate at times, and it’s only been in the past year or so that I’ve acknowledged that this is probably a sign of depression or some other issue with my mental health. I count my lucky stars that I have a partner who is there for me on the approximately fortnightly (but it can vary) occasions that I completely break down. Sometimes I can get … Continue reading on mental health
Reading the backs of shampoo bottles can only get you so far when you’re on intimate terms with the bathroom. Here’s a handy list of ways to wile away the agonising hours (if you add up colitis bathroom time, it gets a little scary!) in the loo. do your nails. Only applicable when you’re not in writhing pain. put on moisturizer. Nothing like a bit of tearing up to help it soak in! listen to music. Especially good if you’re worried about unseemly noises, just bring along a iPod dock and crank it. Although, let’s be honest, if you’re at … Continue reading things to do while stuck in the bathroom
And by birds, I mean the evil ones that live in my large intestine! And by evil birds in my large intestine, I mean pain in my large intestine! What tomfoolery! So. Here’s where I’m at, colitis-wise, at quarter to ten on November 28th, 2012, approximately two years since being diagnosed. OW. FUCK. BLOOD. OW. Get the picture? I’m on a trial for an ‘amazing’ new colitis-specific drug (as opposed to most other treatments, which are designed more for Crohn’s/rheumatoid arthritis/etc) which ain’t doing diddly squat. The first part of the trial was uber-frustrating, because nothing was happening, but it … Continue reading angry birds