Shouts from the void…

I’ve been so dreadful at maintaining this lately. Life is busy, and it’s winter. Combine those two things with an eternally uncooperative immune system and chronic blah-blah-blah and I’ve been pretty exhausted when I’ve been in a position to write things. Which is a pain, both for my disposable income and my general creative juices. So, … Continue reading Shouts from the void…

Elsewhere: Writehanded Girl

A couple of weeks ago I wrote a guest post for Sarah Wilson’s Writehanded website. It’s an excellent blog about important health and advocacy issues, and it was wonderful to be included. Here’s a snippet: Yes, when I’m clothed and in company, I look pretty darn normal. Pink-cheeked, four limbs, certainly not frail or underweight. But when … Continue reading Elsewhere: Writehanded Girl

curled-up flesh

Pain. Drowning  crinkle-cut curled-up flesh in whitest milk. Obligation lifts the cup, pours it in. No foil-wrapped magic tricks want to have anything to do with it; the capsule sinks below the surface before it can ignite. Flickers as a match might, but with the untiring power of the glowing ember. No end in sight. The worst … Continue reading curled-up flesh

this whereabouts

I am drowning in implications and connections. I had my first specialist appointment in months. He didn’t suggest prednisone, so thank gods for that. But I am back on potent-as-hell medication. New stuff (for me, not for the pharmaceutical world) so perhaps it will work better. And a scope on the cards next week, after … Continue reading this whereabouts

twenty-four and maybe falling

Arriving home in tears, clutching an absurdly large pizza box (full), after sitting on the bus (full) next to various Wellingtonians who all would have appreciated more elbow space than my pizza permitted. Some foodstuffs just aren’t destined for public transport. It was dark (of course, June, poorly laid plans) and the buying of this ridiculously … Continue reading twenty-four and maybe falling