Endurance

I went back under shortly after the nurse spoke to me. There are no more memories of the post-surgical ward, where they watch you so carefully to make sure your body remembers how to breathe and pump blood and fire neurons and all the things that it might not be so crash hot at after however many hours of general anaesthetic. Eventually the machines attached to me and the observations taken by nurses came to an agreement. I was deemed fit to return to the land of the living. Continue reading Endurance

Fatigue

  Just because you have objective truths fuelling your fatigue doesn’t make it any easier to accept. I am in remission, in essence. But that doesn’t mean that I’m healthy. It means that my CRP levels are acceptable. My ferritin isn’t too bad. I don’t have urgency that inhibits my movements day-to-day. I go to the bathroom more than average but that’s partly because I have less intestine than average.  Four or five trips a day is fine for me. There’s no blood, no mucous, infrequent cramps, relatively infrequent full-blown diarrhoea. But my bones ache. Arthritis can be a secondary … Continue reading Fatigue

The first time

I was going through my old Tumblr to find my go-to chocolate cake recipe, and stumbled upon this… my first ever IBD-related blog post, I suspect. 25 May 2011. I thought I’d post it here for posterity. Those were the days… incredible pain on the daily, uncontrollable urgency, no painkillers, incapable of properly attending lectures. But also, relatively simple meds with less impact on my total system. No surgery, no steroids, no biologics. Not even my full-blown diagnosis yet. Anyway, without further ado, here’s 20-year-old Briar’s words about IBD:   Last December, after various fun filled tests, I was diagnosed … Continue reading The first time

magic juice – adalimumab adventures

I remembered that I am very nearly due for my next jab, and realised that I’m all out of meds. I’m not very good at maintaining a healthy array of fridgular options, but I can usually be depended upon to have a syringe or two of expensive medication tucked in between a Lush face mask and a block of Gouda on the edge of turning. *** Last time I picked up my Humira, I had the sudden thought that it’s the most expensive thing I ever put in my backpack these days. Two syringes technically cost more than my MacBook Air. … Continue reading magic juice – adalimumab adventures

The Crohn’s Saga (to date)

When I talk to people, I speak freely. I open my mouth, and words come – thoroughly rehearsed, to a point. Every time I tell my mirror about my life, it’s a slightly different rendition of the same song. This is how it goes.

In high school, I was a swot. I went to a posh school, I was a high achiever, I was a musician. I didn’t even think to be rebellious until my last year, and my rebellion was not of the extreme variety. Most of my free periods were taken up with scholarship classes, but swot that I was (am, at heart) I had far too many, and three sessions overlapped.

So on occasion, I would tell art history I was going to French, French I was going to Spanish, and Spanish I was going to art history, and spend the fifty minutes feeling guilty while scribbling rambling poems in my binder instead. I got a second piercing in one lobe. That was my acting out. Continue reading “The Crohn’s Saga (to date)”

Small Mercies – TPPA discussions and biologics

We have heard this morning about new developments within TPPA talks, after several days of delays brought about by continued discussion on various topics, including dairy, the automotive industry, and biologic medications. People understand what dairy means to New Zealand, and what the automotive industry means to other players in the TPPA, but ‘biologic’ is something of a mystery word. Some articles refer to cancer sufferers, some go into no detail at all, just that word, ‘biologic’. It seems like it’s important for people to understand the significance of biologic medication for individuals with a variety of different conditions – … Continue reading Small Mercies – TPPA discussions and biologics