Just because you have objective truths fuelling your fatigue doesn’t make it any easier to accept. I am in remission, in essence. But that doesn’t mean that I’m healthy. It means that my CRP levels are acceptable. My ferritin isn’t too bad. I don’t have urgency that inhibits my movements day-to-day. I go to … Continue reading Fatigue
I was going through my old Tumblr to find my go-to chocolate cake recipe, and stumbled upon this… my first ever IBD-related blog post, I suspect. 25 May 2011. I thought I’d post it here for posterity. Those were the days… incredible pain on the daily, uncontrollable urgency, no painkillers, incapable of properly attending lectures. … Continue reading The first time
I remembered that I am very nearly due for my next jab, and realised that I’m all out of meds. I’m not very good at maintaining a healthy array of fridgular options, but I can usually be depended upon to have a syringe or two of expensive medication tucked in between a Lush face mask … Continue reading magic juice – adalimumab adventures
When I talk to people, I speak freely. I open my mouth, and words come – thoroughly rehearsed, to a point. Every time I tell my mirror about my life, it’s a slightly different rendition of the same song. This is how it goes.
In high school, I was a swot. I went to a posh school, I was a high achiever, I was a musician. I didn’t even think to be rebellious until my last year, and my rebellion was not of the extreme variety. Most of my free periods were taken up with scholarship classes, but swot that I was (am, at heart) I had far too many, and three sessions overlapped.
So on occasion, I would tell art history I was going to French, French I was going to Spanish, and Spanish I was going to art history, and spend the fifty minutes feeling guilty while scribbling rambling poems in my binder instead. I got a second piercing in one lobe. That was my acting out. Continue reading “The Crohn’s Saga (to date)”
We have heard this morning about new developments within TPPA talks, after several days of delays brought about by continued discussion on various topics, including dairy, the automotive industry, and biologic medications. People understand what dairy means to New Zealand, and what the automotive industry means to other players in the TPPA, but ‘biologic’ is … Continue reading Small Mercies – TPPA discussions and biologics
I’ve been so dreadful at maintaining this lately. Life is busy, and it’s winter. Combine those two things with an eternally uncooperative immune system and chronic blah-blah-blah and I’ve been pretty exhausted when I’ve been in a position to write things. Which is a pain, both for my disposable income and my general creative juices. So, … Continue reading Shouts from the void…
A couple of weeks ago I wrote a guest post for Sarah Wilson’s Writehanded website. It’s an excellent blog about important health and advocacy issues, and it was wonderful to be included. Here’s a snippet: Yes, when I’m clothed and in company, I look pretty darn normal. Pink-cheeked, four limbs, certainly not frail or underweight. But when … Continue reading Elsewhere: Writehanded Girl