On operations and depression and musical talent wasted. Sorry, more angst before I get back into reviewing. It happens. There is a Banksy poster on my wall – The Girl With The Balloon’. There is always hope. I bought it in a lighter time. Now, even though it is opposite it my bed, I rarely notice that it is there. Unconsciously ignoring the message? Overworked and overwrought; life is catching up on me. Study and work and never saying no to requests for extra hours; trying to create my own things on the side. And on top of all of … Continue reading The dark and the difficulty
So, I decided to have a play around with VIDEO. In here, there is much medication related rambling, self-introduction, diagnosis palaver… all of the things that you have quite possibly come to know and love from me and Wamblecropt already. Plus, it’s all in my oh-so-charming kiwi accent, which obviously doesn’t come across in my written posts. So, enjoy, and let me know if you’d like more video type posts! Continue reading an adventure in the wonderful world of IBD vlogging!
I just learned that it’s evidently ‘National Health Blog Post Month‘, according to wegohealth.com, anyway. Now, obviously I am not from the US, nor based there, but I figure that I’ll just treat it like NaNoWriMo – National though the name be, there’s no reason why it can’t stretch out internationally! Since it’s the third of November now, I have a little bit of catching up to do, but I think it’ll still manage to toddle along nicely. So, without further ado, I bring you days 1, 2 & 3 of the ‘challenge’, as it were. Nov. 1 Favorite Fridays … Continue reading National Health Blog Post Month Part 1, 2 & 3
It’s a serious misconception out there among some people that the similarity in acronyms and the word ‘bowel’ across both must mean that IBD and IBS are fairly similar. It drives me crazy. Irritable bowel syndrome can be an unpleasant thing to experience for some people. I’d wager in some cases it can even be quite nasty. But when people flippantly refer to IBD as ‘irritable bowel disease’, rather than ‘inflammatory bowel disease’, it does nobody any favours. It furthers the notion that somehow IBS is comparable to Crohn’s and ulcerative colitis. That if people with IBD could just manage … Continue reading IBD vs IBS – let’s talk it out
Or, more accurately, how not to handle stomal surprises. Like a pro, or like any kind of sane person.
Forewarning that this post is a little more stoma/ostomy centric than others, and if you don’t have the experience of an ostomy – or at least IBD yourself, it may be a little much for you to handle.
staring down the barrel of re-diagnosis. – an update on my surgery/ostomy/UC/IBD situation. not fun. encouragement welcomed. via staring down the barrel of re-diagnosis. Continue reading staring down the barrel of re-diagnosis
I had my follow-up appointment with my surgeon yesterday. It wasn’t great. I was going into the appointment thinking everything’s going fine, I’m back at work, I’m healing up, the stoma’s looking mostly fine except for the hypergranulation around the outside. I’ll have ‘replumbing’ surgery ASAP, we’ll say a fond farewell to Buffy the Stoma and the rest of my colon and welcome the new, yet to be named j-pouch. The best laid plans… See, I had a Hartmann’s procedure (basically a colonic resection/partial colectomy) because my surgeon wanted to be sure that it wasn’t Crohn’s before yanking the whole … Continue reading staring down the barrel of re-diagnosis
Originally posted on Raw Library Reading the backs of shampoo bottles can only get you so far when you’re on intimate terms with the bathroom. Here’s a handy list of ways to wile away the agonising hours (if you add up colitis bathroom time, it gets a little scary!) in the loo. do your nails. Only applicable when you’re not in writhing pain. put on moisturizer. Nothing like a bit of tearing up to help it soak in! listen to music. Especially good if you’re worried about unseemly noises, just bring along a iPod dock and crank it. Although, let’s … Continue reading THINGS TO DO WHILE STUCK IN THE BATHROOM.
Originally posted on Raw Library [Section 1 – at home! since, you know, if you’re sick, home is often where the heart, and the head, and the whole body are] 1. Bubble bath. Perks include – it can calm you down (and stress can be a factor for some people with bowel problems), you can douse yourself in all kinds of sparkly delicious smells to disguise any (probably imaginary, but no less disturbing!) lingering odours that you may be inflicted with, AND, most conveniently, more often than not, it’s the same room as your toilet. SUPER WIN. 2. Bring your … Continue reading 14 WAYS TO HAVE A RAD TIME, EVEN IF YOUR SIGNIFICANT OTHER IS THE PORCELAIN THRONE.
Here are some numbers – I’m 23 years old. I’ve been diagnosed with ulcerative colitis for a smidge over two and a half years. I’ve had IBD-type symptoms for 4-5 years. And in 18 days, I’ll be getting a partial colectomy. Yes folks, I’m booked for surgery. September 11th, of all days. I will be heading out to the Manukau Surgery Centre, and I’ll be there for at least 3-4 days. Approximately a third of my large bowel will be removed – though they won’t know for sure until they’re going in, of course – my last scope was in … Continue reading the official countdown begins