The dark and the difficulty

On operations and depression and musical talent wasted. Sorry, more angst before I get back into reviewing. It happens. There is a Banksy poster on my wall – The Girl With The Balloon’. There is always hope. I bought it in a lighter time. Now, even though it is opposite it my bed, I rarely notice that it is there. Unconsciously ignoring the message? Overworked and overwrought; life is catching up on me. Study and work and never saying no to requests for extra hours; trying to create my own things on the side. And on top of all of … Continue reading The dark and the difficulty

curled-up flesh

Pain. Drowning  crinkle-cut curled-up flesh in whitest milk. Obligation lifts the cup, pours it in. No foil-wrapped magic tricks want to have anything to do with it; the capsule sinks below the surface before it can ignite. Flickers as a match might, but with the untiring power of the glowing ember. No end in sight. The worst days were better, because hope was still cradled that the broken parts could be cut away and mended, dead branches and grafts. But the poison is in the tree and eventually there will be nothing left but dried parts broken on the forest floor. All … Continue reading curled-up flesh

this whereabouts

I am drowning in implications and connections. I had my first specialist appointment in months. He didn’t suggest prednisone, so thank gods for that. But I am back on potent-as-hell medication. New stuff (for me, not for the pharmaceutical world) so perhaps it will work better. And a scope on the cards next week, after which I will almost certainly be going on Humira, as long as I fulfil all of the necessary criteria. Humira, by the by, is the brand name for adalimumab, a TNF (tumour necrosis factor – mmm, tasty)  inhibiting drug that is used in the treatment … Continue reading this whereabouts

world IBD day

It is May 19th – at least in New Zealand, it is. On this day, the following things have happened throughout history Anne Boleyn was beheaded (1536) Nellie Melba, the soprano and namesake of a delicious dessert, was born (1861) Oscar Wilde was released from prison (1897) Pol Pot, leader of the Khmer Rouge and totalitarian dictator of Cambodia, was born (1925) André René Roussimoff, AKA André the Giant, was born (1946) Marilyn Monroe sang ‘Happy Birthday’ to JFK (1962) Tu’i Malila , the world’s oldest known tortoise died at 188 years old (1965) Jodi Picoult, Queen of Depressive Chick Lit, … Continue reading world IBD day

an adventure in the wonderful world of IBD vlogging!

So, I decided to have a play around with VIDEO. In here, there is much medication related rambling, self-introduction, diagnosis palaver… all of the things that you have quite possibly come to know and love from me and Wamblecropt already. Plus, it’s all in my oh-so-charming kiwi accent, which obviously doesn’t come across in my written posts. So, enjoy, and let me know if you’d like more video type posts! Continue reading an adventure in the wonderful world of IBD vlogging!