I remembered that I am very nearly due for my next jab, and realised that I’m all out of meds. I’m not very good at maintaining a healthy array of fridgular options, but I can usually be depended upon to have a syringe or two of expensive medication tucked in between a Lush face mask … Continue reading magic juice – adalimumab adventures
When I talk to people, I speak freely. I open my mouth, and words come – thoroughly rehearsed, to a point. Every time I tell my mirror about my life, it’s a slightly different rendition of the same song. This is how it goes.
In high school, I was a swot. I went to a posh school, I was a high achiever, I was a musician. I didn’t even think to be rebellious until my last year, and my rebellion was not of the extreme variety. Most of my free periods were taken up with scholarship classes, but swot that I was (am, at heart) I had far too many, and three sessions overlapped.
So on occasion, I would tell art history I was going to French, French I was going to Spanish, and Spanish I was going to art history, and spend the fifty minutes feeling guilty while scribbling rambling poems in my binder instead. I got a second piercing in one lobe. That was my acting out. Continue reading “The Crohn’s Saga (to date)”
Pain. Drowning crinkle-cut curled-up flesh in whitest milk. Obligation lifts the cup, pours it in. No foil-wrapped magic tricks want to have anything to do with it; the capsule sinks below the surface before it can ignite. Flickers as a match might, but with the untiring power of the glowing ember. No end in sight. The worst … Continue reading curled-up flesh
It is May 19th – at least in New Zealand, it is. On this day, the following things have happened throughout history Anne Boleyn was beheaded (1536) Nellie Melba, the soprano and namesake of a delicious dessert, was born (1861) Oscar Wilde was released from prison (1897) Pol Pot, leader of the Khmer Rouge and totalitarian … Continue reading world IBD day
Here are some numbers – I’m 23 years old. I’ve been diagnosed with ulcerative colitis for a smidge over two and a half years. I’ve had IBD-type symptoms for 4-5 years. And in 18 days, I’ll be getting a partial colectomy. Yes folks, I’m booked for surgery. September 11th, of all days. I will be … Continue reading the official countdown begins
come help me be the colitis social media queen? PSA for fellow IBD types – especially those from Auckland – I’m running the Facebook (and possibly other social media) for Crohn’s & Colitis Auckland, and it’s looking pretty sad. I don’t have the budget for advertising or anything (although I may do some flyering around … Continue reading come help me be the colitis social media queen?
always have an interesting pair of socks sticking out from your hospital gown. scope went well enough, results were as expected – thank GOD – if the camera had showed that things were looking great, then i would have flipped out a bit, as i don’t want to be told ‘nah, we ain’t taking that … Continue reading how to be the sassiest girl in gastro