I broke my ankle. In three places. And dislocated it. And tonight is my tenth night in a row in Auckland Hospital. I arrived in an ambulance on a Wednesday. I was meant to be flying to Honiara on the first Friday. I’d be back by now if I’d gone. I was meant to be … Continue reading so i broke my ankle…
Just because you have objective truths fuelling your fatigue doesn’t make it any easier to accept. I am in remission, in essence. But that doesn’t mean that I’m healthy. It means that my CRP levels are acceptable. My ferritin isn’t too bad. I don’t have urgency that inhibits my movements day-to-day. I go to … Continue reading Fatigue
I was going through my old Tumblr to find my go-to chocolate cake recipe, and stumbled upon this… my first ever IBD-related blog post, I suspect. 25 May 2011. I thought I’d post it here for posterity. Those were the days… incredible pain on the daily, uncontrollable urgency, no painkillers, incapable of properly attending lectures. … Continue reading The first time
I remembered that I am very nearly due for my next jab, and realised that I’m all out of meds. I’m not very good at maintaining a healthy array of fridgular options, but I can usually be depended upon to have a syringe or two of expensive medication tucked in between a Lush face mask … Continue reading magic juice – adalimumab adventures
It’s two years and a day since I had surgery. Unexpected, life-saving, emergency surgery. I was in incredible pain before it, and different kinds of incredible pain after it. Before the operation, I was doubled over. Stabbing sensations, rolling walls of abdominal agony that would come and crest and fall just because I moved a fraction of … Continue reading marking time / health misadventures
A couple of weeks ago I wrote a guest post for Sarah Wilson’s Writehanded website. It’s an excellent blog about important health and advocacy issues, and it was wonderful to be included. Here’s a snippet: Yes, when I’m clothed and in company, I look pretty darn normal. Pink-cheeked, four limbs, certainly not frail or underweight. But when … Continue reading Elsewhere: Writehanded Girl
I trim the stems of
hospital tulips with my
ostomy scissors Continue reading Hospital haiku. December 4–8.
