It’s both a good sign – in many, many ways – and also very frustrating that I’m actually in a ‘let’s get working on this story’ frame of mind right now, when, for all practical intents and purposes, it ought to be my bedtime right now. And experimenting with caffeinated beverages again over the past couple of days has produced mixed results. But I’m actually getting excited about how this ‘novel’ – I hesitate to call it that, because it’s still very fragmentary, and has a long, long way to go yet before it’s anywhere near pre-editing completion, but that’s … Continue reading novel concepts
For quite some time, I’ve been aware that I probably need counseling, or therapy, or whatever you want to call it. As much as I have unhealthy intestines, I also have a brain that doesn’t cooperate at times, and it’s only been in the past year or so that I’ve acknowledged that this is probably a sign of depression or some other issue with my mental health. I count my lucky stars that I have a partner who is there for me on the approximately fortnightly (but it can vary) occasions that I completely break down. Sometimes I can get … Continue reading on mental health
I’ve been meaning to do a video post, just for kicks, and because hey, why not bring some roguish Kiwi charm to the colitis and literature discussion table? But that’s not tonight, because I’m suddenly feeling spectacularly sore, and am hour by hour convincing myself that I am getting more and more of a prednisone moon-face. So that’s a blast. Related, kind of, here’s my current new-drug status… – Week and a bit on prednisone. – One and a half days since my first infliximab/Remicade infusion – Week and a bit on my increased dose of Asacol (4 pills twice … Continue reading where did normal go?
And a quick health related post as well, because shit’s been going down! Kind of! Well, to be honest, it hasn’t been anything that wasn’t already expected. I went in for an appointment on Tuesday, with the nurse and doc running the trial I’m on. Hypothetically, it was for my next dose of the drug, but we all went into it knowing that, unless something had happened of a dramatic nature over the weeks beforehand, there wasn’t any point continuing. So we’re not. And I finally nodded, in moderate defeat, when prednisone was brought up. The many and varied medical … Continue reading and habit-forming
Reading the backs of shampoo bottles can only get you so far when you’re on intimate terms with the bathroom. Here’s a handy list of ways to wile away the agonising hours (if you add up colitis bathroom time, it gets a little scary!) in the loo. do your nails. Only applicable when you’re not in writhing pain. put on moisturizer. Nothing like a bit of tearing up to help it soak in! listen to music. Especially good if you’re worried about unseemly noises, just bring along a iPod dock and crank it. Although, let’s be honest, if you’re at … Continue reading things to do while stuck in the bathroom
And by birds, I mean the evil ones that live in my large intestine! And by evil birds in my large intestine, I mean pain in my large intestine! What tomfoolery! So. Here’s where I’m at, colitis-wise, at quarter to ten on November 28th, 2012, approximately two years since being diagnosed. OW. FUCK. BLOOD. OW. Get the picture? I’m on a trial for an ‘amazing’ new colitis-specific drug (as opposed to most other treatments, which are designed more for Crohn’s/rheumatoid arthritis/etc) which ain’t doing diddly squat. The first part of the trial was uber-frustrating, because nothing was happening, but it … Continue reading angry birds