I broke my ankle. In three places. And dislocated it. And tonight is my tenth night in a row in Auckland Hospital. I arrived in an ambulance on a Wednesday. I was meant to be flying to Honiara on the first Friday. I’d be back by now if I’d gone. I was meant to be hosting a clothing swap today. And I’m meant to be flying to Wellington on Wednesday. I had an operation the day before yesterday. I lay face-down on the table for as long as it took, but I don’t remember that part. They repositioned me while … Continue reading so i broke my ankle…
It’s two years and a day since I had surgery. Unexpected, life-saving, emergency surgery. I was in incredible pain before it, and different kinds of incredible pain after it. Before the operation, I was doubled over. Stabbing sensations, rolling walls of abdominal agony that would come and crest and fall just because I moved a fraction of an inch too far. I didn’t know what was wrong. I mean, on a grand scale, I did, because when you’ve got Crohn’s, it’s a fair bet that what’s ailing you somewhere in the digestive tract is Crohn’s related. But it was a different kind … Continue reading marking time / health misadventures
When I talk to people, I speak freely. I open my mouth, and words come – thoroughly rehearsed, to a point. Every time I tell my mirror about my life, it’s a slightly different rendition of the same song. This is how it goes.
In high school, I was a swot. I went to a posh school, I was a high achiever, I was a musician. I didn’t even think to be rebellious until my last year, and my rebellion was not of the extreme variety. Most of my free periods were taken up with scholarship classes, but swot that I was (am, at heart) I had far too many, and three sessions overlapped.
So on occasion, I would tell art history I was going to French, French I was going to Spanish, and Spanish I was going to art history, and spend the fifty minutes feeling guilty while scribbling rambling poems in my binder instead. I got a second piercing in one lobe. That was my acting out. Continue reading “The Crohn’s Saga (to date)”
It is May 19th – at least in New Zealand, it is. On this day, the following things have happened throughout history Anne Boleyn was beheaded (1536) Nellie Melba, the soprano and namesake of a delicious dessert, was born (1861) Oscar Wilde was released from prison (1897) Pol Pot, leader of the Khmer Rouge and totalitarian dictator of Cambodia, was born (1925) André René Roussimoff, AKA André the Giant, was born (1946) Marilyn Monroe sang ‘Happy Birthday’ to JFK (1962) Tu’i Malila , the world’s oldest known tortoise died at 188 years old (1965) Jodi Picoult, Queen of Depressive Chick Lit, … Continue reading world IBD day
So, I decided to have a play around with VIDEO. In here, there is much medication related rambling, self-introduction, diagnosis palaver… all of the things that you have quite possibly come to know and love from me and Wamblecropt already. Plus, it’s all in my oh-so-charming kiwi accent, which obviously doesn’t come across in my written posts. So, enjoy, and let me know if you’d like more video type posts! Continue reading an adventure in the wonderful world of IBD vlogging!
I had my follow-up appointment with my surgeon yesterday. It wasn’t great. I was going into the appointment thinking everything’s going fine, I’m back at work, I’m healing up, the stoma’s looking mostly fine except for the hypergranulation around the outside. I’ll have ‘replumbing’ surgery ASAP, we’ll say a fond farewell to Buffy the Stoma and the rest of my colon and welcome the new, yet to be named j-pouch. The best laid plans… See, I had a Hartmann’s procedure (basically a colonic resection/partial colectomy) because my surgeon wanted to be sure that it wasn’t Crohn’s before yanking the whole … Continue reading staring down the barrel of re-diagnosis
hello, friends and followers! i’m properly back home now, after one night at my mum’s, since she’s closer to the clinic for follow up appointments, such as i had this morning, and with several more to come. yay! my energy and concentration levels are still a little lacking, so it may be a little while before i catch up on a whole week’s worth of poems, but hopefully i’ll get there. everything’s healing nicely, according to my nurses, and i decided last night that, in the grand tradition of naming body parts (you know some people do it), my temporary stoma is called buffy. because it’s … Continue reading sort of back in action! a photo/gif essay
Here are some numbers – I’m 23 years old. I’ve been diagnosed with ulcerative colitis for a smidge over two and a half years. I’ve had IBD-type symptoms for 4-5 years. And in 18 days, I’ll be getting a partial colectomy. Yes folks, I’m booked for surgery. September 11th, of all days. I will be heading out to the Manukau Surgery Centre, and I’ll be there for at least 3-4 days. Approximately a third of my large bowel will be removed – though they won’t know for sure until they’re going in, of course – my last scope was in … Continue reading the official countdown begins
this countdownis wearing me downthe waitingoh the waitingthe moment soonwhere a tangible waitarrives in my palms(outstretched, beadedwith sweat) Continue reading so soon
…having a colorectal surgeon tell you she does actually wonder whether it could be Crohn’s, not ulcerative colitis, because of the area of involvement in the lower colon. It’s more of a ‘we need to be sure before final surgical decisions are made’ type situation, because my case is evidently a bit peculiar. People heading in for colectomies don’t tend to be left-sided folks, like I am – so it’s unusual territory for the surgeon, apparently. The current plan is to take out most of the diseased section, rather than the whole-colon-except-a-rectal-stump as would be the usual course of action … Continue reading things that are scary…