I was going through my old Tumblr to find my go-to chocolate cake recipe, and stumbled upon this… my first ever IBD-related blog post, I suspect. 25 May 2011. I thought I’d post it here for posterity. Those were the days… incredible pain on the daily, uncontrollable urgency, no painkillers, incapable of properly attending lectures. But also, relatively simple meds with less impact on my total system. No surgery, no steroids, no biologics. Not even my full-blown diagnosis yet. Anyway, without further ado, here’s 20-year-old Briar’s words about IBD: Last December, after various fun filled tests, I was diagnosed … Continue reading The first time
When I talk to people, I speak freely. I open my mouth, and words come – thoroughly rehearsed, to a point. Every time I tell my mirror about my life, it’s a slightly different rendition of the same song. This is how it goes.
In high school, I was a swot. I went to a posh school, I was a high achiever, I was a musician. I didn’t even think to be rebellious until my last year, and my rebellion was not of the extreme variety. Most of my free periods were taken up with scholarship classes, but swot that I was (am, at heart) I had far too many, and three sessions overlapped.
So on occasion, I would tell art history I was going to French, French I was going to Spanish, and Spanish I was going to art history, and spend the fifty minutes feeling guilty while scribbling rambling poems in my binder instead. I got a second piercing in one lobe. That was my acting out. Continue reading “The Crohn’s Saga (to date)”
We have heard this morning about new developments within TPPA talks, after several days of delays brought about by continued discussion on various topics, including dairy, the automotive industry, and biologic medications. People understand what dairy means to New Zealand, and what the automotive industry means to other players in the TPPA, but ‘biologic’ is something of a mystery word. Some articles refer to cancer sufferers, some go into no detail at all, just that word, ‘biologic’. It seems like it’s important for people to understand the significance of biologic medication for individuals with a variety of different conditions – … Continue reading Small Mercies – TPPA discussions and biologics
It is May 19th – at least in New Zealand, it is. On this day, the following things have happened throughout history Anne Boleyn was beheaded (1536) Nellie Melba, the soprano and namesake of a delicious dessert, was born (1861) Oscar Wilde was released from prison (1897) Pol Pot, leader of the Khmer Rouge and totalitarian dictator of Cambodia, was born (1925) André René Roussimoff, AKA André the Giant, was born (1946) Marilyn Monroe sang ‘Happy Birthday’ to JFK (1962) Tu’i Malila , the world’s oldest known tortoise died at 188 years old (1965) Jodi Picoult, Queen of Depressive Chick Lit, … Continue reading world IBD day
So, I decided to have a play around with VIDEO. In here, there is much medication related rambling, self-introduction, diagnosis palaver… all of the things that you have quite possibly come to know and love from me and Wamblecropt already. Plus, it’s all in my oh-so-charming kiwi accent, which obviously doesn’t come across in my written posts. So, enjoy, and let me know if you’d like more video type posts! Continue reading an adventure in the wonderful world of IBD vlogging!
I just learned that it’s evidently ‘National Health Blog Post Month‘, according to wegohealth.com, anyway. Now, obviously I am not from the US, nor based there, but I figure that I’ll just treat it like NaNoWriMo – National though the name be, there’s no reason why it can’t stretch out internationally! Since it’s the third of November now, I have a little bit of catching up to do, but I think it’ll still manage to toddle along nicely. So, without further ado, I bring you days 1, 2 & 3 of the ‘challenge’, as it were. Nov. 1 Favorite Fridays … Continue reading National Health Blog Post Month Part 1, 2 & 3
Or, more accurately, how not to handle stomal surprises. Like a pro, or like any kind of sane person.
Forewarning that this post is a little more stoma/ostomy centric than others, and if you don’t have the experience of an ostomy – or at least IBD yourself, it may be a little much for you to handle.
staring down the barrel of re-diagnosis. – an update on my surgery/ostomy/UC/IBD situation. not fun. encouragement welcomed. via staring down the barrel of re-diagnosis. Continue reading staring down the barrel of re-diagnosis
I had my follow-up appointment with my surgeon yesterday. It wasn’t great. I was going into the appointment thinking everything’s going fine, I’m back at work, I’m healing up, the stoma’s looking mostly fine except for the hypergranulation around the outside. I’ll have ‘replumbing’ surgery ASAP, we’ll say a fond farewell to Buffy the Stoma and the rest of my colon and welcome the new, yet to be named j-pouch. The best laid plans… See, I had a Hartmann’s procedure (basically a colonic resection/partial colectomy) because my surgeon wanted to be sure that it wasn’t Crohn’s before yanking the whole … Continue reading staring down the barrel of re-diagnosis
Hello, fine folks who read these pages! I’ve been doing some tinkering over the last few days, as a result of thinking about what directions I want this blog to go in – but at the same time, how I want to pursue my online presence overall. So… I’ve created a new blog/website explicitly for the health related topics that I’ve blogged about so very much here – IBD and its affiliated psychological issues, like depression and anxiety. It’s (hopefully) going to become a place for more people than just me to share their stories – but to make that … Continue reading NEWS!