staring down the barrel of re-diagnosis. – an update on my surgery/ostomy/UC/IBD situation. not fun. encouragement welcomed. via staring down the barrel of re-diagnosis. Continue reading staring down the barrel of re-diagnosis
I had my follow-up appointment with my surgeon yesterday. It wasn’t great. I was going into the appointment thinking everything’s going fine, I’m back at work, I’m healing up, the stoma’s looking mostly fine except for the hypergranulation around the outside. I’ll have ‘replumbing’ surgery ASAP, we’ll say a fond farewell to Buffy the Stoma … Continue reading staring down the barrel of re-diagnosis
Hello, fine folks who read these pages! I’ve been doing some tinkering over the last few days, as a result of thinking about what directions I want this blog to go in – but at the same time, how I want to pursue my online presence overall. So… I’ve created a new blog/website explicitly for … Continue reading NEWS!
Originally posted on Raw Library in January this year. It’s official – I have a love/hate relationship with prednisone. I’ve been on it for nearly two months now, and it’s the only thing that’s had any kind of effect on my UC symptoms. But, as previously mentioned, I’ve been tapering it… and my insides have … Continue reading daily drug cocktails, the UC way
Originally posted on Raw Library Reading the backs of shampoo bottles can only get you so far when you’re on intimate terms with the bathroom. Here’s a handy list of ways to wile away the agonising hours (if you add up colitis bathroom time, it gets a little scary!) in the loo. do your nails. … Continue reading THINGS TO DO WHILE STUCK IN THE BATHROOM.
Originally posted on Raw Library [Section 1 – at home! since, you know, if you’re sick, home is often where the heart, and the head, and the whole body are] 1. Bubble bath. Perks include – it can calm you down (and stress can be a factor for some people with bowel problems), you can … Continue reading 14 WAYS TO HAVE A RAD TIME, EVEN IF YOUR SIGNIFICANT OTHER IS THE PORCELAIN THRONE.
Briar’s diagnosis story – originally posted on Raw Library. I was eighteen when I first encountered blood in the toilet bowl. And it definitely wasn’t my period. My first inclination wasn’t to freak out and Google what it meant, and it certainly wasn’t to go to the doctor – eighteen-year-old girl talking to the family … Continue reading briar’s UC diagnosis story